May 3rd – Update

Did you hear about the guy who collapsed trying to climb Mount Everest? – Authorities just found Himalayan there.

Hi everyone, I hope you are enjoying some of these nice days and sun that we’ve been having. It’s been good to be able to get outside more and feel the warmth of some nice sun.

We had a appointment at the Oncologists on Friday, and the plan is:

  • Treatments resume Thursday (7th) – 6 hours, new chemo of carboplatin and paclitaxel. Also they are going to start immunotherapy of keytruda qlex. The current plan is for this to be done every 3 weeks.
  • Endoscopy tomorrow (4th) to see what they can see from there
  • Fluid draining again this week
  • MRI thursday night (7th) on spine, as they had seen spread into the lower back on her L4 on the PET scan, and they want to see what’s happening and if the disease has caused a fracture
  • Next week Monday (11th) getting a PleurX catheter put in so that we can start draining the fluid at home more regularly

Things are more painful for her this last week as a combination of chest (lungs maybe), stomach (this has been ongoing and probably from the tumor site or lymph nodes being enlarged), and now her lower back – have all been aching a bit. We are trying a few things for pain management, so prayers for that to get dialed in sooner than later.

The new chemo will almost certainly have her losing her hair, so that’s a bummer for her. Although on the positive side she’ll be more aerodynamic 😀

Right now her spirits are down due to it feeling like her body is failing. We are hopeful that a combination of being able to drain at home, and the new treatments should hopefully slow or stop the fluid buildup that is happening in the chest, and that should help with the breathing issues and coughing that is going on. Once we know what’s going on with her back we should be able to get that aching/pain figured out as well. So it’s good to have some plans in place and we are hopeful for some relief and to start treatments to slow down or pause what it going on right now.

Abigail is home from college, and it’s nice to have all my girls in one house again, even if it is only for a little while until Abigail starts back up at school in the fall. The picture above is from Saturday before we headed out to a craft fair together.

We are thankful for you all. Keep your thoughts, love, and prayers coming.







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