Just some quick updates:
- Rebecca was released on Monday, we got home in the afternoon
- We are now throughout the day monitoring BP and PulseOx to be able to take the correct medications to keep things moving forward.
- Rebecca is feeling better, but pretty weak from being in the hospital for 5 days in a bed.
- Keytruda imunotherapy was approved, and chemo was rescheduled for tomorrow (Friday) – so this time we’ll do both
- The Oncologist is hopeful that the chemo and imunotherapy will help to dry up the fluid around her lungs a bit
- We also now have an appointment scheduled for radiation consult next week on the 12th
- Lasix has really helped out a lot with lowering the amount of fluid she’s been retaining, so we are continuing with that.
None of us are going through her exact journey right now, but I imagine it’s quite overwhelming, and annoying to be constantly hurting from one or more of the 6 different places that are causing her pain right now. Not able to get comfortable, flair ups of pain that come from nowhere randomly, angry that your body is breaking down on you and not cooperating at all, angry that you can’t do or participate in all of the things you want to. Wanting the pain to go away, but not wanting to spend your time in a drugged out-of-it state, so playing the game of waiting to take things until the pains become too much, but then needing to bare through the next 30-60 minutes of more pain to wait for medicine to kick in. It literally sounds like torture to me. Rebecca’s body may be weak, but she’s got a strength and a will to keep going. It’s quite remarkable, and inspiring, I just don’t see myself able to be that strong.
So requests for prayer for that last paragraph. Saying it’s tough to go through has to be an understatement. Prayers for me and the girls, as it’s tough to watch helplessly, that we may serve her well in whatever little ways we can.
Through this all, God continues to provide and give us hope and strength. It’s a little strange, but I was thankful for all the time hanging out at the hospital with Rebecca. We got lots of time of talking and hand holding and relaxing. It was also really amazing the way that she was so well cared for by the staff at the hospital. Thankful for Abigail being home to help with making sure that things were running well there and being there with Annabelle while I was with Rebecca. Thankful for my work situation – I can’t imagine being in a normal job that wouldn’t allow for the flexibility that I have to be able to just focus on Rebecca and be available to be with her and travel to appointments, it’s truly a blessing for both of us. All of the love and support, offers for help, meals, and people just checking in with us is so warming and makes us feel quite loved. Thank you all.
